The National Association for Rights Protection and Advocacy supports people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity, and choice.
The NARPA collection contains audio tapes of conferences held between 1993 and 2002.
In 1973 Hampshire Day House was established to provide day treatment to patients released from the Northampton State Hospital, which first opened as the Northampton Lunatic Asylum in 1858. As the Day House expanded its services it became known as the Northampton Area Mental Health Services (NAMHS). Valley Programs assumed responsibility for the operation of residential programs for deinstitutionalized individuals in Hampshire and Franklin counties in 1983, and seven years later the NAMHS and Valley Programs merged.
The collection consists of reports, financial records, board minutes, and correspondence for the Hampshire Day House.
The Northampton State Hospital was opened in 1858 to provide moral therapy to the “insane,” and under the superintendency of Pliny Earle, became one of the best known asylums in New England. Before the turn of the century, however, the Hospital declined, facing the problems of overcrowding, poor sanitation, and inadequate funding. The push for psychiatric deinstitutionalization in the 1960s and 1970s resulted in a steady reduction of the patient population, the last eleven of whom left Northampton State in 1993.
With the Government Documents staff, SCUA has digitized the annual reports of the Northampton State Hospital from the beginning until the last published report in 1939. The reports appeared annually from 1856 until 1924 and irregularly from then until 1939.
Rebecca Nourse, born on October 5, 1928, was Laurence G. Nourse’s second child. Laurence, a graduate of Dartmouth College, was a long time educator and served as the Superintendent of Schools for Norton, Mass. from 1924 to 1958. Rebecca was born with intellectual disabilities and after attending the Norton Public Schools and the Deveraux School, now known as Devereux Advanced Behavioral Health, she was committed to the Belchertown State School in 1949. She remained at Belchertown for eleven years, transferring to the Laconia State School in Laconia, New Hampshire so she could be closer to her parents’ home in Deery. Rebecca died on March 12, 1993.
The Rebecca T. Nourse Collection though small, paints a rich portrait of the challenges of managing a daughter’s care in a State institution. The collection is made up of Laurence’s correspondence leading up to Rebecca’s commitment and with State School administration about issues ranging from replacing Rebecca’s broken glasses to attempts to make her tuition more affordable for their family. There are also a small number of letters from Rebecca to her father and mother and Rebecca’s commitment papers, school reports, certificates, brochures, and her death certificate.
The McLean Asylum for the Insane was founded in 1811 though a charter granted by the Massachusetts Legislature. The original campus was built around a Charles Bullfinch-designed mansion in what’s now Somerville, Mass. and was fully completed by 1818, when it was officially opened. It became the first hospital in New England dedicated to the treatment of the mentally ill. The Asylum outgrew its original campus in the 1890s and moved to Belmont, Massachusetts in 1895, where it was renamed McLean Hospital. The Hospital is still active today as a division of Massachusetts General Hospital and is a teaching hospital for Harvard Medical School.
The eleven stereographs of what was then known as the McLean Asylum for the Insane were taken by Edwin N. Peabody of Salem, Mass. as part of a larger series called “American Views.” They depict the original Somerville campus of McLean Hospital, including the buildings and grounds and the “Ladies’ Park and Billiard Room,” with women patients on the grounds outside.
Darby Penney, born in 1952, was herself a psychiatric survivor and devoted her life to activism and support of the psychiatric consumer/survivor/ex-patient (C/S/X) movement. Above all, she believed the voices of survivors themselves should be used in policy and program design, and she spent the latter part of her life collecting those voices in her C/S/X Oral History Project. Penney worked for the New York State Office of Mental Health for almost fifteen years, with roles including Director of Recipient Affairs and Director of Historical Projects, until she was let go in 2003 due to her outspoken views on coercive treatment of patients. This freed her to devote her time to creating nonprofits and advocacy groups for the C/S/X movement, as well as overseeing the Oral History Project. She designed a museum exhibit to give voice to the patients of Willard State Hospital, based on the contents of more than four hundred suitcases found in the hospital’s attic, and co-authored a book called The Lives They Left Behind: Suitcases from a State Hospital Attic, published in 2008. Penney died in 2021.
The Darby Penney Papers comprise Penney’s research on psychiatric treatment and patient narratives, her writings and presentations, and her oral history work, including over two hundred interviews done by the C/S/X Oral History Project. The documentation, cassette tapes, and transcripts of this project forms the bulk of the collection.
While serving with the U.S. Navy in the Philippines during World War II, the teenaged Bob Perske became aware of the vulnerable and disabled in society and turned his life toward advocacy on their behalf. Studying for the ministry after returning to civilian life, Perske was appointed chaplain at the Kansas Neurological Institute, serving children with intellectual disabilities for 11 years, after which he became a full-time street, court, and prison worker — a citizen advocate — laboring in the cause of deinstitutionalization and civil rights of persons with disabilities, particularly those caught in the legal system. After Bob married his wife Martha in 1971, the two became partners in work, with Martha often illustrating Bob’s numerous books and articles. In 2002, Perske was recognized by the American Bar Association as the only non-lawyer to ever receive the Paul Hearne Award for Services to Persons with Disabilities.
The Perske Papers contains a fifty year record of published and unpublished writings by Bob Perske on issues surrounding persons with disabilities, along with correspondence, photographs, and other materials relating to the Perskes’ activism. The correspondence includes a particularly rich set of letters with a fellow advocate for persons with disabilities, Robert R. Williams.
Stored offsite; contact SCUA to request materials from this collection.
Founder of Post-Polio Health Internation, Gini Laurie was born in 1913 and named after two older sisters who died of polio. Known as the “grandmother” of the independent living movement, Laurie urged people with all kinds of disabilities to work together to end institutionalization and to support independence. As a hospital volunteer, she founded Rehabilitation Gazette, a newsletter that became an internationally known advocacy journal. Beginning with this publication, which enabled polio patients who finished rehabilitation to stay in touch, PHI evolved into a networking organization. By the early 1980s PHI established the first post-polio conferences, bringing together polio survivors and physicians with the goal of determining why polio survivors were developing new disabilities. In 2019, PHI adopted a new mission “to collect, preserve, and make available research and knowledge to promote the well-being and independence of polio survivors, home ventilator users, their caregivers and families, and to support health professionals who treat them.”
The Post-Polio Health International records include materials throughout the organization’s history from its founding in 1960 to the 2010s. The collection captures the efforts and initiatives behind PHI’s vital mission to enhance the lives and independence of polio survivors and home mechanical ventilator users by promoting education, networking, and advocacy among these individuals and healthcare providers. Offering a comprehensive overview of PHI’s history, the collection contains correspondence, runs of newsletters and other publications, photographs, clipping files, board minutes, and financial documents.
Klaus Postler was a visual artist and curator who lived and worked in New England. Born Michael Edward Postler on March 23, 1951, he grew up in Yonkers, New York, and Connecticut. He was an avid collector of paper ephemera, which he included in his large-scale paintings and collages. From the late 1970s he was an enthusiastic participant in the international mail art movement, labelling his enterprise the Social Artists Reality Empire (S.A.R.E.). One of the exhibitions he curated was the Ray Johnson Memorial Mail Art Show at UMass Amherst, in 1996, for which he put out an open call and received mailed responses from around the world. Postler traveled in Europe and forged relationships with artists there, especially in Germany. In addition to his art practice, he worked for many years picking apples and pruning trees at New England orchards. Postler pursued his education at a number of institutions, with some difficulty due to his dyslexia, and completed his bachelor’s degree in 1998 through the University Without Walls program at UMass Amherst. He was a MacDowell Colony fellow in 2000, and returned to UMass to earn his MFA in studio art in 2005. Late in his life he cared for the estate of the artist Robert Mallary. He died on January 6, 2013, at his studio in Conway, Massachusetts.
The Klaus Postler collection contains a variety of sketchbooks that also functioned as diaries, as well as daybooks and dream journals; slides of his work; and photographic prints. Also included is an assortment of mail art, some created by Postler but mostly work sent to him by other artists, which Postler included in exhibitions he curated in Brattleboro, Vermont, and at UMass Amherst. Thomas Jahn, known as Horsefeathers, is a prolific contributor of mail art. The collection also includes documentation from posthumous gallery shows and a commemorative book about his work published by his partner, Eileen Claveloux.
Born into a Jewish family in the town of Buzau, Romania, the endocrinologist and psychopathologist Ionel Florian Rapaport entered the University of Paris in 1937 to study under the eminent psychologists Maxime Laignel-Lavastine and Charles Blondel. Surviving the war by posing as a Christian, he completed a dissertation on ritual castration, Les Faits de castration rituelle, essai sur les formes pathologiques de la conscience collective (1945), which was published three years later as Introduction à la psychopathologie collective : la secte mystique des Skoptzy. In 1953, Rapaport emigrated to the United States and joined the faculty at the Psychiatric Institute of the University of Wisconsin, where he became noted for research into the social aspects of mental disorders and juvenile delinquency. It was there in 1956, that he discovered a statistical correlation between the incidence of Down Syndrome and exposure to fluorides, a study that became widely cited by opponents of fluoridation of the water supply and widely criticized by proponents. Rapaport died of cancer in 1972.
The Rapaport Papers contain a large quantity of raw data, research notes and correspondence relating to over two decades of research into mental disorders, centered largely upon his study of the link between Down Syndrome and fluoridation. Due to the potential sensitivities of some material in the collection, researchers must agree not to reveal the names of any patients before gaining access.
