Collecting area: Disability

Born in Indiana, the writer Lucy Gwin (1943-2014) lived “a lot of lives,” in her own words, working in advertising, as a dairy farmer, civil rights activist, and deckhand on ships servicing oil rigs, all before the age of 40. While living in Rochester, N.Y., in 1989, however, her life took a sudden turn. After a head-on collision with a drunk driver left her with traumatic brain injury, Gwin was remanded for care to the New Medico Brain Rehabilitation Center, where she witnessed a world of isolation, patient abuse, and powerlessness. Never one to shrink from a challenge, she escaped from the Center and used her skills as an organizer and writer to expose conditions at New Medico and shut the facility down. Through her experiences, Gwin emerged as a powerful, often acerbic voice in all-disability rights advocacy, becoming the founder, designer, and editor of the influential Mouth Magazine in 1990.

Lucy Gwin’s papers document the advocacy of an important figure in the disability rights movement. The rich documentation for Mouth Magazine includes comprehensive editorial files arranged issue by issue, some correspondence with authors and supporters, and copies of the published issue. The balance of the collection contains Gwin’s other work as a writer, personal correspondence, and materials relating to her experiences with and campaign against New Medico.

Born in Torringford, Connecticut in 1806, and educated at the Torringford Academy and Berkshire Medical College (MD 1827), Erasmus Darwin Hudson became well known as a radical reformer. While establishing his medical practice in Bloomfield, Conn., and later in Springfield, Mass., and New York City, Hudson emerged as a force in the antislavery struggle, hewing to the non-resistant line. Touring the northeastern states as a lecturing agent for the Connecticut Anti-Slavery Society and general agent of the American Anti-Slavery Society, he regularly contributed articles to antislavery periodicals and befriended many of the movement’s leaders. In his professional life as an orthopedic surgeon, Hudson earned acclaim for his contributions to the development of modern prosthetics. During the carnage of the Civil War, he introduced remarkable improvements in artificial limb technology and innovations in the treatment of amputations and battle trauma, winning awards for his contributions at international expositions in Paris (1867) and Philadelphia (1876). Hudson died of pneumonia on Dec. 31, 1880.

Spanning five generations of a family of physicians and social reformers, the Hudson Family Papers include particularly significant content for Erasmus Darwin Hudson documenting his activities with the Connecticut and American Anti-Slavery societies. Hudson’s journals and writings are accompanied by a rich run of correspondence with antislavery figures such as Abby Kelley, Wendell Phillips, Frederick Douglass, William Lloyd Garrison, Isaac Hopper, and Samuel May and a unique antislavery campaign map of New York state and surrounding areas (1841). Hudson’s medical career and that of his son Erasmus Darwin Hudson, Jr. (1843-1887), a thoracic physician, is equally well documented through correspondence, medical notes, and handwritten drafts of lectures, with other material ranging from family records and writings of and other family members to genealogies of the Hudson, Shaw, Clarke, Fowler, and Cooke families, and printed material, memorabilia, clipping and photographs.

Founded in 1917, the International Center for the Disabled was the nation’s first outpatient rehabilitation center. With the support of benefactor Jeremiah Millbank, the ICD was dedicated to helping disabled veterans reintegrate into all aspects of American life. Over the years, it has assumed a leading role in development of the profession of physical medicine, training physicians and nurses for the Veterans Administration, creating rehabilitation programs for the Army and VA, manufacturing prosthetics, and providing vocational rehabilitation for disabled veterans and others. The ICD remains a leading international advocate for the needs of people with disabilities and was instrumental in passage of the Americans with Disabilities Act in 1990, remaining true to their mission of training people with barriers to employment as they enter the workforce.

The ICD collection includes a rich array of official minutes, correspondence, and publications documenting the development of rehabilitation services for persons with disabilities, and a remarkable record of the success of a philanthropic enterprise. Of particular note are are the large holdings of photographs documenting ICD’s work from its early days through the dawn of the 21st century.

An artist, writer, and activist for the disabled, Paul S. Kahn was born on Nov. 6, 1945, into a second-generation family of Jewish immigrants in Auburndale, Mass. Early in life, Kahn rebelled against the perceived “powerlessness” of the neuromuscular disorder with which he was born, pursuing an artistic, academic, and activist life. While studying drawing, painting, and sculpture at Boston University and earning a MA in counseling at Northeastern (1982), Kahn became an activist in the independent living movement and a pioneer in advocating for personal care assistance. Living independently from 1979, he worked as staff therapist at the Beth Israel-Deaconess Medical Center, as leader of a support group for the Muscular Dystrophy Association, and as a member of the Massachusetts Governor’s Advisory Commission on Disability Policy. In 1980, Kahn met Ruth Stern, who would become his frequent collaborator and wife of 21 years. As Kahn’s physical condition weakened after 1987 and he became dependent upon a ventilator, his creative focus shifted increasingly from art to writing and editing. The last two decades of his life were remarkably productive, resulting in over twenty plays and dozens of published essays and poems, and he was the long-time editor of the newsletter Disability Issues. Kahn died on Jan. 1, 2010.

Paul Kahn’s papers are a reflection of the intensely creative life of a committed activist. The collection centers on Kahn’s literary work, including manuscripts of his plays, essays, and poetry, but it includes numerous examples of his artwork and a number of home movies and tape recordings from his childhood.

Temporarily stored offsite; contact SCUA to request materials from this collection.

Denise Karuth and Fred Pelka are activists and historians of the disability rights movement based in Massachusetts. Both are graduates of SUNY Buffalo, while Karuth holds a masters in rehabilitation counseling from Boston State College and a masters in divinity from the Episcopal Divinity School in Cambridge. Karuth came into activism through her church’s involvement in the civil rights movement and her own experience as a student dealing with blindness and multiple sclerosis at the State University of New York at Buffalo. After moving to Boston, her activism continued in efforts by the disability community to secure accessible and affordable mass transit in Massachusetts, and she has been involved with a broad spectrum of disability campaigns and organizations, serving as a peer counselor for people with disabilities, as Executive Director of Boston Self-Help Center, as a consultant on disability issues for the Human Genome Initiative, as a grant writer at the Stavros Center for Independent Living, and as Chair of the Governor’s Commission on Accessible Transportation under Gov. Michael Dukakis. She has also been an advocate for people who are homeless and was a principal founder of the First Church Shelter of the First Church in Cambridge. Karuth’s lifelong partner Fred Pelka, himself a person with disabilities, became involved in disability rights activism in 1983 while working at the Boston Center for Independent Living, and has made an impact as an editor and prolific author since. A 2004 Guggenheim Fellow, he has written three books on disability issues: The ABC-CLIO Companion to the Disability Rights Movement (1997), The Civil War Letters of Charles F. Johnson, Invalid Corps (2004), and What We Have Done: An Oral History of the Disability Rights Movement (2012). His fourth book, A Different Blaze, was published by Hedgerow Books in 2014, and is his first published poetry.

The Karuth and Pelka collection documents thirty years of social justice activism in Massachusetts centered on the movement for disability rights. Beginning in the1980s struggle for accessibility in transportation, the collection reflects the breadth of Karuth’s commitments and work on issues ranging from apartheid and US imperialism to homelessness and HIV/AIDS, and her work with organizations such as First Church in Cambridge, Amnesty International, Not Dead Yet, the Governor’s Council of Accessible Transportation, and the Boston Self Help Center. Pelka’s part of the collection contains extensive research and background material, notes, and drafts for each of his books, including lengthy transcripts of interviews with pioneers in disability rights.

Born in Chicopee Falls, Mass., Aubrey D. Lapolice (1893-1981) was a maintenance superintendent at the Belchertown State School for a forty year period, from the time of its establishment through his retirement in 1961. A veteran of the First World War, he oversaw a campus of nearly 850 acres and a physical plant of nearly one hundred buildings and structures. He died in February 1981.

The Lapolice collection includes 35 images of the physical plant and construction projects at the Belchertown State School during its first two decades of operation and 21 images of the welcome home parade in Belchertown in 1946 for returning American troops.

From the latter days of the Lyndon Johnson administration through the early years of Ronald Reagan, Harvey Liebergott served in the US Bureau of Education for the Handicapped. As director of the Bureau’s Information and Recruitment program, he helped develop and disseminate information on the educational needs of disabled children through program such as the National Information Center for the Handicapped’s “Closer Look” films and a variety of print and media campaigns that advertised available services. Liebergott left Washington in the changing political environment of the Reagan era.

The Liebergott collection includes a sampling of audio and video productions from the early years of federal support for persons with disabilities, along with a small selection of correspondence and ephemera.

Temporarily stored offsite; contact SCUA to request materials from this collection.

A lifelong activist for social and environmental justice, Kevin McVeigh was among the founders of two prominent antinuclear and environmental organizations in Northern California, the Pelican Alliance (1978) and Interhelp (1981). After relocating to Massachusetts, he continued in environmental activism, founding the Green River Center in Greenfield in 1987, but in response to the intense public health crisis, he gradually shifted his focus to become an advocate for persons with HIV/AIDS. As a founder of the AIDS Community Group of Franklin County (Mass.), he has coordinated AIDS services for Tapestry Health, a not-for-profit organization providing affordable health care to in Western Massachusetts.

The McVeigh Papers document a career as a committed antinuclear activist and advocate for persons with HIV/AIDS. The collection includes organizational materials from each of the groups McVeigh helped found: The Pelican Alliance, Interhelp, the Green River Center, the AIDS Community Group of Franklin County, and Tapestry Health, as well as correspondence, newspaper clippings, journals and magazines related to the issues concerning, notes from HIV/AIDS caregivers’ conferences, materials relating to men’s support groups, and other material related to environmental protection and anti-war activism. Finally, the collection includes audio files of an oral history (approximately two hours) conducted with McVeigh in July 2010, and a small collection of antinuclear books from small publishing houses.

Known in the psychiatric survivors’ movement as Kalisa, Cynthia Miller was a radical activist on behalf of the mentally ill. An ex-patient based in New York, she became a member of Project Release in the early 1970s, one of the first wave of organizations fighting for the civil rights of mental patients and combatting forced institutionalization, and was a contributor to Madness Network News and other publications. A poet, writer, and a committed feminist and out lesbian, she took part in civil disobedience to oppose electroconvulsive therapy, working with Judi Chamberlin, George Ebert, Leonard Roy Frank, and others.

Though varied and fragmentary, Cynthia Miller’s collection is a rich resource for study of the early history of the psychiatric survivors movement and the work of one activist in resisting psychiatric oppression. The collection contains some of Kalisa’s writings and correspondence along with ephemera and a varied collection of newspapers, newsletters, and other publications relating to Project Release and several other organizations that Kalisa supported, including the Mental Patients Liberation Front and the Alliance for the Liberation of Mental Patients.

The National Association for Rights Protection and Advocacy supports people with psychiatric diagnoses to exercise their legal and human rights, with the goals of abolishing forced treatment and ensuring autonomy, dignity, and choice.

The NARPA collection contains audio tapes of conferences held between 1993 and 2002.